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Friends of FSH Research

Mission: The mission of Friends of FSH Research is to accelerate the discoveries that will lead to treatments or cures for FSHD. To achieve their goal, they actively manage a portfolio of research that supports a pipeline for drug discovery. Their board, staff, volunteers, and world-class scientists are fully committed to transparent, reproducible, and transformative science that will inspire hope for people with FSHD.

They are small and dedicated to our mission. They are an all volunteer organization.

Goal: Friends of FSH Research a 501 (c) (3) organization is working to impact the lives of those affected by FSH Muscular Dystrophy by financially supporting FSHD research.

Category: People with disabilities

Other Ways to Get Involved:

During the year they reach out to artists and the community to procure items for their only fundraising event - an annual charity auction & dinner.

They need help using social media to promote their work and to share research efforts to those with FSHD muscular dystrophy. They need a team of volunteers to help run the gala - volunteers help with their silent auction set up and the closing, selling raffle tickets, interacting with supporters, and being sure the gala runs as planned.